A family isn't determined by who is or isn't in it, or how it came to be, but by the bond that is created by the love that is shared.

Wednesday, November 12, 2008

A Doctor a Day...

Brady had his first appointment with his pediatrician last Thursday. I had a couple of things I was concerned about, but instead I was thrown for a loop after she examined him. Seems he very likely has a cleft palate! It is officially called a "submucous cleft palate" because the roof of his mouth does have a lining. His uvula (the thing that hangs in the back of your throat) is in two pieces, which is an indication that the palate did not fully come together. She took one look and made this announcement. I'm baffled at how it is possible that not one of the doctors in Kaz recognized it.

This diagnosis causes several other things to make sense now: his chronic head congestion, irritated throat, and his discomfort when eating lumpier foods. We have an appointment with the cleft palate team at Children's Hospital in Denver next Monday. We'll confirm the diagnosis, then over a period of 1.5 hours, we will meet with a social worker, have a hearing test performed, then run the gamut with the specialists: pediatrician, ear-nose-throat specialist, plastic surgeon, dentist, genetic counselor, occupational therapist, and speech therapist. By the time we leave, we will have a verbal recommendation on treatment, which generally means surgery. Needless to say, my head is still spinning!

Since last Thursday, Brady has also had 7 vials (yes SEVEN) of blood drawn for labwork (all at once -- 20 minutes of screaming while I held him in a vice-grip), first round of vaccines (including flu shots for both of us) Monday, a ninety-minute EEG appointment yesterday (after what might have been a mild seizure last week), and back to the doctor today for more bloodwork and to check the TB test. All these doctor visits are exhausting for both of us! Overall though, he is gaining weight and doing well.

Trying the mesh feeder so he'll learn how to feed himself and to chew. Yum! I have to admit to loving watching that little mouth at work when he eats at this age. I know it won't be so cute for much longer once he learns how to chew.



Other than all this fun, things are going well. In the last couple of days he has decided that screaming like someone is trying to kill him is a ton of fun. He's not in pain, he's just fine, but apparently likes the sound of his own very loud screeching voice! I keep waiting for the police to knock at my door. Anyone have any suggestions how to tone him down? My ears are ringing!

First time in the oh-so-fun playpen.


Every time since in the not-so-fun playpen.



Callie is also tolerating him a bit more. He wouldn't leave her alone while she was eating last night though and she hissed at him then bopped him on the head. I've been trying to keep a close eye on them so no swatting, scratching, or other damage would occur to either of them. Apparently she gets that he is just a baby. She just bopped him on top of the head (no claws out), exactly like she used to do to Merlin when she would get annoyed. It was really rather funny and he was startled, but still very delighted with the whole thing. He giggled and started crawling right after her. Sigh. Poor Callie.

He is destined to be a contortionist, I think. He squeezed under the rung on this chair...


Planned his next move...

Over he goes...

Almost there...

All in an attempt to reach the one that is ignoring him in true cat fashion.

10 comments:

Baby Kaz Moore said...

Brady is ABSOLUTELY PRECIOUS! In fact, he's handsome.

Yep, that diagnosis woulda looped me. Hope all turns out okay. We've already been knocked out twice with anethesia. All turned out fine, though I was nervous. Let me know if it'd be helpful to compare notes or experiences.

If you get a chance, I'd love to learn more about what the geneticist evaluation considers. I've not thought about that. Best, Susan smooretexan@gmail.com

Susan and Robert said...

Hi Alysa,

I am so sorry that you (and Brady) have to go thru this! I am sure it will all turn out perfectly, but none the less the bumps in the road are never fun. At least you have an explanation for the mysterious symptoms and that should give you comfort! He definitly isn't lacking in the cuteness factor!

Susan

Susan said...

aww Poor Brady and poor Mommy goingthru all that-but I'm so glad that they figured that out so quickly--that totally makes sense though based on all his symptoms and if you can get it fixed-then that's great news, even though you have to go thru all that right now.

He is a very handsome boy-and I am proud to say I got to see him in person to!

Great pictures-he is so funny!! I love his lil jammies with feets. :)

Keep us informed of what's happennin. We are waiting for Leeza's insurance card, it should be here anyday-so I can go get her checked out as well.

the pack and play did NOT go over well here either-NO WAY. She likes to be on the floor, even if she's covered in dog hair. LOL

I didn't think she'd like it-but was hoping she'd sit in there and play while I cooked dinner or whatever-but um, NO. We are still using our Kaz walker though-LOL

poobail said...

Hi Alysa. Wow, is Braden cute! You two seem to really be settling in to life together at home. I'm sorry you got hit between the eyes with all that medical info. Feel free to call or email me privately if you want/need any more info on any of it. Since I work with audiologists and lots of adoptive parents I have vast resources at my fingertips. Hang in there and enjoy that cutie pie! =-)
Margaret poobail@msn.com

Sandi said...

Alysa,
Braden is absolutely gorgeous, that smile is just so cute. I am sorry you are having to go through all of this, but hopefully they have caught it early enough that they can get it fixed and he can continue growing and flourishing.

Please keep us updated.. Sending hugs from Florida.

Sandi

Karla and Ben said...

Hi Alysa, Sorry to hear about the cleft palate. I loved all of the pictures. Cute Halloween costume. Brady looks like he is loving life. :-) -Karla

Regina said...

Whoa, what a shock that must have been! I'm so sorry to hear that you and Brady are having to go through all of this. But yes, at least you have a logical explanation for his persistent symptoms. It makes more sense now. At least it is something that is correctable. I know you don't want him to have to have surgery, but they bounce back so quickly!

He is such a beautiful boy and I love seeing all the new photos of him around the house. It may be a while before he and the cat become good friends. ;-) Milo still terrorizes our dogs, but they are now getting used to each other for the most part.

Please keep me posted on what you find out with all of the doctor exams. It's no fun at all going through all that. You are a warrior!

I think of you often and hope to maybe see you at Kazapalooza in April!

Milo says hi and sends hugs to you and Brady.

Love,
Regina

Kelly and Sne said...

Wow! What a surprise for you to discover these things about Brady. We discovered that Miras has some eye drift, our pediatrician noticed it right away but there was no mention of it by Kaz Drs either. (This can be caused by birth trauma but fortunately the eye Dr. thinks it is simply a develomental delay...) It makes you wonder about what they DO focus on. The first ped appts are pretty traumatic for all involved. We, too, had to wrestle Miras down for 5 shots and 4 vials of blood. I felt worse that he did, I'm sure. He seems to be thriving - and is cuter than ever - so I'm sure that everything will work out with his medicals.

We've had to throw all sorts of novel stuff into the play yard to keep Miras happy in there (kitchen implements mostly...). And turn the TV on as a last resort....

Jennifer said...

Wow, my head is spinning and I'm not even in your shoes. The bright side is they figured it out pretty quickly and are scheduling him for a battery of tests. (Nothing like being told "we don't know.")

Brady has the most beautiful eyes. They are so perfectly Kazakh. I love them! And he just keeps getting bigger! Must be all that mommy-love!

I hope the tests go as smooth as can be hoped with minimal tears and stress. Please keep us posted, and know that I will be thinking of you guys.

Angela said...

Geez, Alysa. That is some serious doctor time. We have our appointments at the pediatrician and international adoption clinic next month - not looking forward to those. The cleft palate would have thrown me for a loop too. Who knew?

He is one cute boy. I have not seen the mesh things. Good idea. I love watching Alia gum her food. It is the cutest thing - she looks like an old toothless man, but much cuter. Okay - how many times can I write 'cute'?

I hope all the doctors appointments go well. He sure looks happy despite the shots and blood draws.